Thank you. Thank you for being a doctor who listens. I can't tell you what a relief that is. Sadly, I've had to see enough doctors throughout my life to know the really good ones from the really, really bad ones. You are clearly among the former.
I was so fortunate, all through my childhood and early teenage years, to have some of the best doctors there could ever be. Perhaps some of that had to do with my mom's connections, being one of the best nurses in the Tri-State area. Whatever the reason, my sick little self got amazing care. Yes, I was a frequently ill child. I've had Scarlet Fever..... twice. I've had Pneumonia..... twice. I got Chicken Pox...... twice. Add to that asthma as a younger child, colds and cases of bronchitis that came three times a year like clockwork, allergies in the Summer, and an ear infection so bad that the ENT doctor had to suction out my ear with this long metal tube, which hurt so badly that I screamed. Actually, Dr. L, I think that is the perfect segue to let you know about some of the wicked, incompetent, callous human beings who have introduced themselves to me as "doctors".
The whole ear infection fiasco was probably my first experience with a really horrible doctor. Fortunately, she was working with one of the best doctor's I've ever seen, so her idiocy was quickly put into check, and I was able to get the medical attention I so badly needed. This was about 18 years ago, so I don't remember all of the details. I remember my ears popping about 100 times in the span of about 5 minutes, and an hour later, pain. Excruciating pain. Naturally, to the doctor's office I go! She came at me with a cotton swab, and started poking around in my ear. When she brought the swab out, it was green.
Like this green:

Now, I would think that a doctor would look at that and say something along the lines of, "Holy Shit! You've got a serious infection going on!" (you know, something like that...). But, no. She told me, and the doctor standing beside her, that I must have stuck a green marker in my ear. That's right, Dr. L. I was 13, not 3. A green f'ing marker. Despite my insistence that I was not, in fact, a toddler, she was adamant that this was the case. You can imagine my frustration, I'm sure. Thankfully, the other doctor saw fit to send me to an ENT specialist just in case I hadn't gone all crayola on my ear canal. The result was the aforementioned ear suction, and two weeks of antibiotics and pain killers.
By now, you must be thinking, "Well, that really is awful, but everyone has bad experiences from time to time. Surely, that's as bad as it gets, right?" Oh, Dr. L, you do have a wonderful sense of humour. It's one of the reasons I like you so much. But, no. Sadly, that was neither the worst nor the last bad experience I had with a doctor. Let's fast-forward to 2003, a mere three weeks before my wedding.
I didn't know it at the time, but the pain I'd been feeling in my abdomen for the previous 5 days was, in fact, my very first ovarian cyst. In the middle of the night, this cyst ruptured, which is painful in and of itself. But this pain was more than excruciating. It was the kind of pain that makes colours more intense. If you've experienced it, you know what I'm talking about. I eventually made my way to the ER, the pain growing more and more unbearable by the minute. Once there, they contacted their on-call ob/gyn, who demanded an ultrasound before he would even come to the hospital. Fair enough.
They took me in to do the ultrasound, but, as the tech noted, she couldn't see much because, for some reason, the image was "all cloudy". Perhaps you see where this is going. After letting me sit in the hospital for six hours, the ob/gyn finally came in. By the time he got there, I was really out of it, and the pain had spread all the way through my torso, up into my shoulders. He asked me some questions, and finally agreed to do a laparoscopy (where they go in with a camera to see what's going on), but, he added, "I doubt we'll find anything". Yeah. Nice.
I went under the knife, and upon waking, the doctor was much nicer to me. You see, as it turns out, a really rare thing happened. When that cyst ruptured, it yanked open my f'ing ovary, and I'd been bleeding internally for that whole time. He ended up having to cauterize my ovary shut, and suctioned about 2 pints of blood out of my abdomen. "I doubt we'll find anything", indeed.
I could go on and on. There was another ob/gyn who allowed a room full of students observe his procedures on me, without even asking my permission. There was the time when the trunk latch on my car came down on the top of my head, but since I didn't lose consciousness, the doctor said nothing was wrong with me, even though I woke up screaming for about six months afterward, due to the searing pain in my head. There was the doctor I saw just before you, who told me to take Tylenol for pain so bad that it kept me up at night (please, don't you think I would try Tylenol before sitting in your damn waiting room for 3 hours??).
After all this, I'm sure you can understand why I'm wary of doctors, and why I have little patience for those I feel are not listening to me. To be sure, I have also had some amazing doctors. Dr. G saw me throughout my teenage years. I think she may have been the only doctor in the world who wouldn't have thought me a total hypochondriac. I saw her at least 6 times a year, due to all of those conditions I mentioned earlier. She listened to me. She believed me. She talked to me like a person. But, it seems, in that way she also spoiled me. I was unprepared for the larger world of medical care due to her true expertise, in all senses of the word.
You, however, are another Dr. G. The last time we met, I brought in a three-page list of issues to discuss with you, trying to connect the dots over the last two years. I've been having pain in my joints off and on for that whole time, and I was determined to tell you about all of it. You listened. You promptly ordered blood work (it wasn't your fault the lab ran the wrong tests, and then lost the results for 2 months). You recommended me to a rheumatologist (who I will see in 2 weeks). You discussed medication options with me, to see what would make me the most comfortable - both in terms of pain relief, and in terms of what will allow me to continue my daily routines.
I had a similar experience with you yesterday. We talked. We had a conversation about my health. I can't tell you how much I value that, Dr. L. Not to mention, I noticed that you had personalized, autographed pictures of the Rolling Stones and Ozzy Osbourne on your wall. That did add a few bonus awesome-points to your score.
Back to the point, I don't know if many doctors understand how important that dialogue is. I've been pretty down lately. Every day, I wake up in pain, and even the smallest things only make it worse. That is really difficult to get through. If I were to feel like my doctor wasn't even listening to me when I shared these things, that would only add to the emotional response I'm having to all of this. It's no fun to hear that you've tested weakly positive on the ANA (lupus) test..... twice. It's no fun to hear that your blood results show signs of inflammation in your body..... twice. It's no fun when simply going up stairs, or standing up from a chair, or getting out of a car causes pain like lightning to course through your joints. But knowing that you appreciate my stance as an empowered patient makes it a little more bearable.
Thank you so much for your understanding, your attentiveness, and your tendency to be pro-active in patient care. While I dislike the reasons for my coming to see you, I am glad that I have found you, and look forward to working with you in the future.
Warmly,
Me